The Sweetest Thing

I’m watching Ashton have “school” for the first time in many months. He’s so in to it.  He is HUNGRY for this. The teacher said her material was too easy for him, which doesn’t surprise me. He has retained a lot more than I thought and reading seems to come naturally for him. Due to … [Read more…]

The Many Faces of Ashton

He woke up this morning and said brightly, “Hey Mom, it’s time to get up!” This is where I jump up and flail for my glasses. I said, Hey! How about I go get you some milk and grab my coffee and we will get ready for the play room?(We have a litany of things … [Read more…]

very interesting : take ONE

Someone should be filming this. Our days are long and strange. Yesterday was a blur of sedation and pain meds and vomit and fever and vomit and fever, etc. Today is ” better” in a weird way. The first time Ashton stayed awake all day on Ativan. Woo-Hoo. (For HIM, maybe) Coordination=out the window. Falling … [Read more…]

The Show Is On The Road

The Chemo Road. Dose one was at 4pm today and dose two is coming up in a few minutes. I’m taking this time to blog because I really don’t know what is going to happen next. He has been so resilient (because he is resistant to chemo?) I don’t know. But whatever the hell Fludarabine … [Read more…]

Hall Pass

This morning, during Rounds, Ashton was running laps around the team of doctors and babbling. He has an ANC above 3000 (up from zero a month ago), so after hearing that he is the healthiest kid on the floor, Dr. Turpin(who was just cracking up watching his Tigger-like antics, asked if we wanted a four hour pass. … [Read more…]

What You Should Never Do

Never, ever finish reading, “The Fault In Our Stars” in a hospital room in the middle of the lonely night when you are far, far away from anyone you would ever even call because what the hell would you say, anyway, while your son is sleeping and his  little body is fighting. Never, ever use all … [Read more…]

This Is What I Get

I haven’t written since last? Wednesday? Therefore, I don’t remember much since then. I do believe we have redefined, “slapstick”. What’s funny now is watching my son giggle after receiving his pre-anesthesia medicine. He laughs so hard it makes me laugh and cry. What’s also funny is that he’s beginning to speak in a southern … [Read more…]

A Laundry List

1. Finish Laundry 2. Get Mail. 3. Throw away mail. 4. Gas up car. 5. Pack up our lives. 6. Clean 7. Pack up Car. 8. Chicken wire around the garden 9. Forget about the grass 10. Get a neighborhood kid to do grass? 11. Water flowers and garden. 13. Set up arrangements for watering … [Read more…]

Prayer

Ok, fine. I admit it. I spend a lot of timing talking about how there are no coincidences and then I turn around and call everything coincidence. I need to make up my mind, right? (as a quick side note: I recently read something about people who can sleep easily and soundly and anywhere and … [Read more…]

Give It To Me Straight

I have recently been reasoned with. You know how you can hear certain people and you cannot (will not) hear others? I don’t know, that’s how I am. A couple of people have been very frank with me lately. I don’t always hate that. If the message is delivered in the way I can receive it … [Read more…]