Robot Mom

I suppose it’s a pretty good thing I don’t have a gun. I can’t feel anything for more than a split second. I would gladly shoot myself in the leg in order to create a feeling. Where did guttural, howling Mom go? She was here only a couple of weeks ago. She was a disaster. … [Read more…]

Stacks

Ashton Tyler Carley Trent passed on November 11, 2014 after fighting a war most grown men would have lost months ago. He left this world with great dignity and left an indelible mark on everyone he came across. He passed in to the great universe while held in my arms.   Barns. Barns with snow … [Read more…]

St. Juliana Falconieri (1270-1371)

The Patron Saint of Chronic Illness Juliana Falconieri grew up among saints. Her uncle, St. Alexis Falconieri, was one of the seven founders of the Servite order. The priest who taught her as a child and acted as her spiritual director was St. Philip Benizi, one of the early superiors of the Servites. Inspired by … [Read more…]

SUPER NOVA

  The Novalung Interventional Lung Assist (iLA) device is a ventilator that allows for oxygen and carbon dioxide gas exchange to occur by simple diffusion. It has been used in patients with severe acute lung failure due to severe pneumonia. It potentially helps reduce Ashton’s chance of going on the oscillator. Essentially, his vent has … [Read more…]

sign language versus paralytic

I don’t know which is worse. You may think the answer is obvious. The answer is that I should run headlong in to the night, screaming.  Wait, that’s likely not the answer. The answer is that I should start smoking and hanging out at the bus stop with all the other crazy mothers. No. I will … [Read more…]

It Can’t Hurt

NOVENA TO SAINT RAPHAEL THE ARCHANGEL (The Novena Prayer to Saint Raphael must be said for nine consecutive days.)   Glorious Archangel Saint Raphael, great prince of the heavenly court, you are illustrious for your gifts of wisdom and grace. You are a guide of those who journey by land or sea or air, consoler … [Read more…]

Turn The Page

Maybe some inspiration will come to me later. Right now, I am just feeling a little defeated and alone. Not overwhelmed. Not unable to cope. Just, like, wow. Another day of this and no end in sight. None. Now I will post something I read which resounded with me so CLEARLY, I needed to share … [Read more…]