Baby Steps

L and B came Saturday night and we had such a nice dinner out in Hyde Park with Brian. I took them to the only restaurant I could think of: The Cock and Bull. So, naturally Blaise had to make comments about penises. (Penis’?) (Peni?) oh, nevermind. We all shared the BMT Suite and some … [Read more…]

*sigh* (I don’t know what else to call this)

This is a Cherokee symbol for strength and perseverance.   Ashton has had the BK virus for several weeks now. Liken it to a  really bad UTI. Hemorrhagic cystitis (literally peeing blood) It hurts. It is a common complication following high-dose chemotherapy and bone marrow transplantation. BK virus:  (BKV)  causes widespread infection in childhood and remains … [Read more…]

Ohm.

Reiki uses healing energy made up of life force energy that is guided by  spiritually guided life force energy.  Reiki energy seems to have an intelligence of its own, flowing where it is needed in the client and creating  healing conditions. Apparently, it cannot be misused as it always creates a healing effect. Both Ashton and … [Read more…]

Field Trip

Too bad Ashton didn’t know he went anywhere. During rounds on Monday, we were sent “home” to BMT. I was assured he would have adequate care in his delicate condition. Epic fail. To the credit of our awesome doctors, he was holding his own on a respiratory level. He really did seem stable (ish). Everything … [Read more…]

The Good(ish)Witch of Cincy

Depends on who you ask. I am so happy the nurses have a sick sense of humor, too. The docs play serious, but I KNOW they laugh, too. I have stopped even trying to keep a very serious-I know-what-you-are talking-about-look on my face anymore during rounds. Yesterday, I had to ask if it was Saturday. … [Read more…]

PICK YOU

I PICK YOU for PICU, said the Universe about my son. We moved here yesterday. We lost our sunny room in BMT. Due to graphic issues because too disturbing I won’t write about  and respiratory distress, we are in a whole new world without Teenage Mutant Ninja Turtle Posters. Don’t fret, Bunny is here. Ashton wouldn’t know … [Read more…]

GvHD, And The Reality of It

I’m so lost, I don’t even know what I wrote about last so forgive me for any repeats in advance. In exchange, I will try to punctuate. A slew of tests day before yesterday knocked our boy on his ass. He usually comes out of sedation like The Four Horseman from the Apocalypse wrapped up … [Read more…]

Problem #________________.

NASOGASTRIC TUBE:  A tube that is passed through the nose and down through the nasopharynx and esophagus into the stomach. It is a flexible tube made of rubber or plastic, and it has bidirectional potential. It can be used to remove the contents of the stomach, including air, to decompress the stomach, or to remove … [Read more…]

It Would Have Happened Anyway

When Ashton was first diagnosed I tried to make contact with Bruce, the man Penny made me with. Bruce kinda said, hey, that sucks. Bruce has never met Ashton. He has not seen Lily or Blaise since they were…?7 and 4? They don’t even remember him. Heck, I barely remember him. It was a lot … [Read more…]